One of the research studies that Malina is involved with just received a large grant from Alex's Lemonade Stand to further the research!!!! The study is specific to Ewing's Sarcoma. They are trying to find if the tumors have markers in the blood. If so, are they shrinking with the tumor or growing. This will make it possible to have to do less scans on child and to know early on if the treatments are working effectively or not.
The doctor who is head of the study told me that there are approximately 200 new cases of Ewing's Sarcoma a year in the United States and 900 in Europe. There is a lot more research going on in Europe for this kind of cancer than here. He said that there are maybe a handful of studies specific to Ewing's Sarcoma in the United States. I am happy that Malina can be apart of this and hopefully, down the road, this will help other children.
The local Fox 4 news channel interviewed us and another family yesterday about the study. Here is a link to it.
http://fox4kc.com/2014/06/05/alexs-lemonade-stand-supports-kc-childhood-cancer-research/
I found your blog through 1million4Anna and wanted to reach out. My son was diagnosed with ewings when he was 3 years old and is now 5 years old and 9 months cancer free. His was in the left tibia. Please do not hesitate to contact us if we can help in any way! We have a facebook page: https://www.facebook.com/JakersRussell?ref_type=bookmark
ReplyDeleteThere is a link to our blog on that page also. Take care, Kait Russell
krrussell88@gmail.com
Hi. I also found your blog through 1million4Anna. My daughter, Caroline, was diagnosed with Ewing's in her right arm when she was 6. She's now 7 and 6 months cancer free. We have a facebook page: https://www.facebook.com/teamcarolinem .
ReplyDeleteIf there is anything I can help with, questions or venting, please don't hesitate to ask. I will be thinking of your family.
Blessings,
Meghan
lindystr@aol.com